Take part in research or complete a survey

Research projects requiring participants:

Do you have gout arthritis or rheumatoid arthritis?

The University of Auckland is conducting a study to understand how patients with arthritis think about their long-term medications. If you are prescribed methotrexate for rheumatoid arthritis or allopurinol for gout [arthritis], you may be eligible to take part in this study.

Participation involves one 20-30 minute session. Participants will be asked to fill out some questionnaires and attend a short interview asking about their drug-related beliefs and perceptions. As a thank you for participating you will receive a $20 shopping voucher. There will be also an offer of a parking voucher. This study has ethical approval from the Human and Disability Ethics Committee.

If you are interested in taking part in this exciting research, please contact:
Yasaman Emad, University of Auckland
Email: y.emad@auckland.ac.nz
Phone: 027 8000 967, 09 923 4687

Patients with rheumatic conditions taking a biologic are wanted for research

Are you currently taking a biologic medication? Do you have a companion/support person?

The University of Auckland is conducting research to explore how physicians can explain biosimilars to patients taking biologics and sometimes their companion (e.g. partner/spouse, family member, adult child or friend). If you are taking a biologic medication (Humira, Enbrel, Infliximab, Rituximab or Tocilizumab) you may be eligible to take part.

We require participants who can attend one 30-40 minute face-to-face session in Auckland. Participants will receive a brief explanation on biosimilars and will be asked to answer some questions. Please note that you may be asked to bring your companion to the study session.

More information can be found here: http://bit.ly/2GuvPwq

As a thank you for taking part all participants will receive a $20 Westfield voucher. If you are interested in taking part or have any questions, please contact:
Chiara Gasteiger, University of Auckland
cgas770@aucklanduni.ac.nz

Help shape a new handbook for people with osteoarthritis

People in Auckland and the North Shore, if you would like to contribute to the development of a new handbook for people with osteoarthritis, then this is for you.

The purpose of the project is to design an Osteoarthritis Handbook that is responsive to the needs of New Zealanders living with the disease. The study is done in two phases, the first will be a co-design workshop held between 5 pm and 9 pm 13 February 2020 with dinner and koha $100 vouchers at the Auckland University of Technology North Campus. The second phase will be a short survey about the prototype guidebook developed following the workshop. If you are interested in participating in the study, please read the participant information below and contact the project’s research assistant David Lalor – david.lalor@aut.ac.nz. Dr Daniel O’Brien is a senior lecturer in the physiotherapy department at AUT and has a specific interest in the management of osteoarthritis.

For more information, click here

Preparing for surgery? Help test an online stress management program

Preventing gout attacks when starting allopurinol

The Bone and Joint Research Group is collaborating on a study on the effects of taking extra medication to prevent acute attacks of gout.

The University of Auckland, in collaboration with the University of Otago Christchurch, is currently conducting a study on the effects of taking extra medication to prevent acute attacks of gout when commencing allopurinol.

Participants will be asked to fill out a questionnaire about their gout. They will then be provided with study medication and be asked to have follow-up blood tests.

If you:

  • Live in Auckland
  • Are 18 years old or older
  • Have gout arthritis

How does stress affect chronic pain?

Auckland University of Technology is looking for Auckland-based people to take part in the study on how stress affects chronic pain. The PhD study is underway at AUT’s Health and Rehabilitation Research Institute (North Shore Hospital) and is investigating whether pain due to knee osteoarthritis is influenced by stress. People with long term pain conditions such as fibromyalgia are known to have problems with their stress response, which can contribute to chronic pain. We want to know if this is the case in people with knee osteoarthritis. This study will compare people with painful knee osteoarthritis, and people with fibromyalgia, to people who are pain free. Click here for more information.


 

Preventing Gout Attacks When Starting Allopurinol

The University of Otago in Christchurch, in collaboration with the University of Auckland, is currently conducting a study on the effects of taking another medication to help prevent acute attacks of gout arthritis when commencing urate lowering therapy in gout arthritis. We are looking for people with gout arthritis who are not already taking allopurinol.

If you live in Christchurch or Auckland, are aged over 18 years, have gout, and would be interested in taking part in this research, please contact Jill Drake. Some exclusion criteria apply.

Jill Drake, Rheumatology Research Nurse, telephone (03) 378-6088 or 021 0849 6753, or email jill.drake@cdhb.health.nz 


 

AquaPlus Pilot Project

Looking for people aged 45 to 64 years with osteoarthritis and located in Nelson, to take part in the AquaPlus Pilot Project. The aqua classes assist with weight management plus strength and balance. The fun classes provide support and education for people with osteoarthritis. If you would like to take part, or get some more information, please contact Nicola Rae on 021 078 8609 or email her at Nicola@bfit4ever.nz


 

Gluteal Exercises for Hip Osteoarthritis – GHOst Trial

Have you been diagnosed with mild to moderate hip osteoarthritis? Can you still walk a city block? Can you run 5 metres? You may be eligible for the GHOst study! Participants are needed from Dunedin and Mosgiel only.

Click here to read more. 


 

Do you have osteoarthritis of your hand? If so, we want to hear from you

Osteoarthritis (OA) is a common condition affecting thousands of New Zealanders.

We are currently undertaking research exploring the effectiveness of two different types of strengthening exercises for the treatment of hand OA, including the ability of exercise to reduce joint pain and improve a person’s ability to perform important activities of daily living.

It is hoped that findings from this research will inform the design of better treatments for hand OA.

To participate in this study you must be over 18 years of age, have been told by your doctor that you have hand OA, had hand pain for 3 months or longer and currently live in Auckland.

For more detailed information or to contribute to this study please contact Nico Magni on 09 921 9999 ext6581 or email nico.magni@aut.ac.nz


 

Invitation to participate in a research study

 

Complete a research survey:

We are often asked to distribute surveys on behalf of researchers doing important studies on arthritis. We also run our own surveys covering anything from event feedback or surveys to help us improve on your experience with us. Have a look at the current surveys below:

Accessible packaging survey – 2020

Please help us identify products that are difficult to open by taking this survey.

Please click here for more information and to complete the survey.

Should you have any questions regarding this survey, please phone Sally Jackman on 0800 663 463.

Significant issues for people with arthritis

We need your input to help us make sure we address relevant issues on behalf of people with arthritis. Please complete this short survey

Please click here for more information and to complete the survey.

Should you have any questions regarding this survey, please phone Sally Jackman on 0800 663 463.

Tapering biologics therapy

Researchers at the University of Otago are undertaking an online survey about the views of people with rheumatoid arthritis (RA) on reducing biologics. The aim is to explore the views of people with RA about the possibility of reducing their biologic medications such as Enbrel or Humira.

You may participate if you are 18 years of age or older, have rheumatoid arthritis, and have taken or currently on biologics treatment. If you wish to participate further information can be found here.

Survey on reporting side effects of medicines

Medsafe is conducting this survey on reporting side effects to medicines.  The survey is for New Zealand consumers and patients to complete.    
 
The aims of this survey are to explore:
  • How much you know about reporting side effects to medicines
  • How do you find out about how well a medicine works or its side effects.

We would like to know how we can make it easier for you to report side effects to medicines and how to keep you informed about medicines safety.  There are no right or wrong answers.

Responses are anonymous. No personal information is being collected.  

The high-level results of this survey will be published on the Medsafe website.  

Data collected from this survey may be transferred to various countries, including the United States and other locations where SurveyMonkey has offices. Link to SurveyMonkey’s Privacy Policy

Please contact Medsafe’s pharmacovigilance team at MedsafeADRQuery@health.govt.nz with ‘Survey on reporting side effects to medicines’ in the subject line if you have any questions about this survey.  

 

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