Consumer engagement

Participate in research projects or promote your study

In addition to funding research, Arthritis NZ also supports researchers looking to invite consumers to complete surveys, participate in interviews and focus groups or attend sessions that have an in-person study component. 

Projects that provide opportunities to share your lived experiences via research projects are listed below.   

    Caring and Support

    Do you currently provide care for someone, including a child, with a type of arthritis or someone with any other type of illness, disability, or frailty?

    *Please note: this is an opportunity to share the thoughts and feelings you keep to yourself in a safe and anonymous way. 

    For more information, please contact: Sarah Aitken, Research Assistant, Wāhi Kōrero Project, School of Psychology, Massey University. 

    Email: wahikorero@gmail.com.

    This study has been approved by the Massey University Human Ethics Committee (4000032051). 

    Please click on the following link to find out more about Wāhi Kōrero or to share your story: https://wahikorero.co.nz/projects/i-have-provided-care-for-someone/.

    View invitation flyer

    Inflammatory arthritis, osteoarthritis and gout

    Are you an adult in Aotearoa New Zealand who has been diagnosed with inflammatory arthritis, osteoarthritis, or gout?
    If you are currently employed, or have been employed in the past two years, you may be eligible to take part in a research study exploring work and arthritis

    View research flyer

    For more information, please contact Dr Julia Muir (University of Otago, Department of Medicine). 

    Email: julia.muir@otago.ac.nz

    Phone: +64 3 244 1197.

    This study has been approved by the University of Otago Human Ethics Committee reference H25/0579.

    Please click on the button below to find out more about the study.

    Shoulder osteoarthritis

    Do you have shoulder osteoarthritis or care for someone who does? Or are you a health professional treating people with shoulder OA? 

    The SOAR (Shoulder Osteoarthritis Research Priority Setting Partnership) team have made their second survey available so people with shoulder OA, their carers and healthcare professionals can choose their top 10 most important questions they think are important to help set future research priorities. 

    *Please note: you don't have to have completed the first SOAR survey to participate in the latest survey. 

    For more information, please contact the research team either by:

    Email: soar@uq.edu.au. 

    Phone: 0061 488 019 087 (or you can also txt this number & the researchers will call you back at a convenient time). 

    To do the survey, please click on the following link: www.tinyurl.com/soarpsp2 or scan the QR code on the associated flyer. 

    More information about the study is also available on the SOAR website: www.tinyurl.com/soarwebpage.

    This study has been approved by the Low and Negligible Risk Research Ethics Committee at The University of Queensland (Project2025/HE001218: Approved 02.02.2026).

    Funding is being provided by: The Australian New Zealand Clinical Trials Musculoskeletal Network, The Arthritis Movement and Arthritis Australia. 

    View research flyer

    Knee and hip osteoarthritis

    Do you have osteoarthritis (OA) of the knee or hip and have been diagnosed by an orthopaedic surgeon or a GP? Participants from the Auckland area are required.

    For more information, please contact: Dr Rebecca Meiring, Senior Lecturer, Department of Exercise Sciences, University of Auckland.

    Phone: 09 923 4815.

    Email: rebecca.meiring@auckland.ac.nz.

    This study has been approved by the Health and Disability Ethics Committee on 11 September 2020 for three years and continuing. Reference number 20/CEN/200/2025PR9780.

    Please click on the button below to read the Participant Information Sheet: 

    Calcium Pyrophosphate Deposition (CPPD) Disease or Pseudogout

    Do you suffer from calcium pyrophosphate deposition (CPPD) disease or pseudogout? Are you able to visit the University of Auckland’s Clinical Research Centre in person for two study visits 6-months apart?

    For more information, please contact: Dr Vicky Tai, Rheumatologist and PhD Candidate, University of Auckland, Auckland.

    Phone: 022 368 3154.

    Email: cppdstudy@auckland.ac.nz.

    The study has been approved by the Health & Disability Ethics Committee. Reference number 2025 EXP 21801. This study is funded by the Health Research Council of New Zealand. Dr Vicky Tai is a recipient of the Health Research Council Clinical Research Training Fellowship.

    Please click on the ‘Read More’ button below to find out more about the study: 

    Inflammatory arthritis

    Have you been diagnosed by a rheumatologist with inflammatory arthritis (e.g. rheumatoid or psoriatic arthritis)? Have you been prescribed oral methotrexate within the past six months? And are you aged 18 years or older? Participants from the Auckland area are required.

    For more information, please contact: Dr Rachel Murdoch, Senior Lecturer, Department of Medicine, Faculty of Medical and Health Sciences, University of Auckland.

    Phone: 09 923 4139.

    Email: rachel.murdoch@auckland.ac.nz.

    This study has been approved by the Central Health and Disability Ethics Committee on 25/8/2023, reference number 2023 EXP 18153.

    Please click on the following link to find out more about the study and to also access the associated Participant Information Sheet:

    Shoulder osteoarthritis

    Have you been diagnosed with moderate to severe shoulder (or primary glenohumeral) osteoarthritis? Are you aged 55 years or older? Participants from the Christchurch area are required.

    For more information, please contact: Kore Tombs, Physiotherapist and Research Assistant, Faculty of Health, University of Canterbury.

    Phone: 0275 445 496.

    Email: kore@physiohauora.nz

    This study has been approved by the Kaiārahi Rangahau Māori at the University of Canterbury and also been approved by the Ngai Tahu Consultation and Engagement Group.

    This study is funded by the Health Research Council of New Zealand. E8016: Walter – HRC Health Delivery Research Activation Grant 23/993/A and has been approved by the New Zealand Health and Disability Ethics Committee Ethics reference: 2024 EXP 18206.

    This research is registered with Australian New Zealand Clinical Trials Registry (ACTRN12624000479505p).

    Please click on the button below to find out more about the study:

    Gout

    Do you need to get your gout under control? 

    For more information, please contact:

    If you live in Auckland: Harriet (Ngāti Whātua, Te Roroa, Ngāpuhi), Research Nurse or Dr Anne, Research Doctor

    Phone: 021 0849 6887

    Email: easyallo@auckland.ac.nz

    Please click on the button below to access the study website to find out more about the study: Auckland.

    If you live in Christchurch: Jill Drake or Janine Haslett, Research Nurses

    Phone: 021 0849 6753

    Email: research.rheum@cdhb.health.nz

    Please click on the button below to access the study website to find out more about the study: Christchurch.

    Telerehab for arthritis & other long-term conditions

    Are you living with long-term health issues or injuries that include conditions like arthritis, stroke, chronic pain, traumatic brain injury, heart disease, etc.? Have you ever accessed rehabilitation and/or have a view on telerehabilitation? Do you want to improve telerehabilitation in Aotearoa New Zealand? 

    For more information, please contact one of the study’s project managers: Sandy Rutherford, AUT Centre for Person Centred Research or Erina Korohina (Ngāti Porou), Manawaora, The Centre for Health. 

    Phone: Sandy – 021 713 645 or Erina – 07 578 6624 

    Email: sandy.rutherford@aut.ac.nz or hello@thecentreforhealth.co.nz

    This study has been approved by the AUT Ethics Committee on 16/6/2023, AUTEC Reference number 22/355. 

    Please click on the Telerehabilitation Information Booklet button below to find out more about the study:

    Osteoarthritis

    Do you have early Osteoarthritis? Auckland participants are required.

    For more information, please contact: Dr Rebecca Meiring, Principal Investigator.

    Email: rebecca.meiring@auckland.ac.nz

    This study has been approved by the Health and Disability Ethics Committee on 11/09/2020 for three years and continuing. Reference number 20/CEN/200. 

    Please click on the button below to find out more about the study and to also access the associated Participant Information Sheet and Consent Form: 

How you can help

Your help is vital for our advocacy & research for arthritis