Common challenges when navigating the health system
When you’re living with arthritis, working your way through the health system can sometimes feel like a challenge in itself. Whether you’re adjusting to a new diagnosis or trying to manage long-term symptoms, there are common barriers that many people like you and your whānau face and knowing about them can help you feel more prepared.
Long wait times
You might find yourself waiting weeks or even months for a specialist appointment, scan, or treatment. This can be especially hard when you’re in pain or unsure what’s going on with your body. It’s okay to feel frustrated, you’re not alone in this.
Knowing who to see
It’s not always clear whether to start with your GP, ask for a rheumatologist, or connect with a physiotherapist, occupational therapist, or another provider. And figuring out who can refer you and where can be confusing. A good first step is building a strong relationship with your GP. Your GP can help you access other services.
Appointment times being too short
Health appointments are often short, and it’s easy to walk away feeling like you didn’t cover everything. Preparing a list of questions or key points before you go can help you make the most of each visit. Taking a pen and paper and someone with you for support can also help you remember what was said.
Understanding medical language
Medical terms can feel like a whole new language. If a doctor or nurse says something you don’t understand, it’s always okay to ask them to explain it in a simpler way. This is your health and you deserve to understand what’s going on.
Coordinating your care
Sometimes, different parts of the system don’t talk to each other. You may end up repeating your story or juggling appointments and results across several providers. It can help to keep a folder (or digital record) of your test results, medications, and notes from appointments.
The costs of arthritis care
While some services are free or subsidised, others - especially in the private system - may involve fees. Medications, specialist appointments, or even travel costs can add up. If cost is a barrier, let your GP or pharmacist know so that they can suggest more affordable options or services.
The emotional load of arthritis
Trying to get answers, advocate for yourself, and manage your symptoms can feel exhausting, especially on tough days. It's okay to feel overwhelmed. Reaching out for support can make a difference, whether that’s talking to someone you trust or connecting with our team.
