Parents of children with arthritis

Finding out your child has juvenile idiopathic arthritis can be overwhelming. You might feel shock, sadness, or even relief at finally having answers. Whatever you're feeling, know that you are not alone. Many other whānau are walking this journey too, and support is available every step of the way.

Juvenile idiopathic arthritis (JIA) is a long-term autoimmune arthritis condition that affects children. Learning about what it is, how it can be managed, and what the future can look like is an important first step toward confidence and connection

At Arthritis NZ, we offer support that helps you and your child navigate daily life, access care, and build strong relationships with others who understand.

Supporting your child at home means creating a calm, predictable environment where their needs are understood and respected. Some practical tips include:

• Build a routine: use calendars, notes, or apps to keep track of medication times, appointments, and energy levels
• Encourage gentle movement: activities like swimming, cycling or stretching help support joint health, and can be part of everyday play
• Nourish their body: a balanced diet that helps support strong bones, especially if your child is taking steroids
• Manage pain and fatigue at home: warm baths, heat or cold packs, gentle distraction (like music or drawing), and pacing activities can help ease discomfort

Your child’s learning environment plays a big role in their wellbeing. It’s important that teachers and support staff understand your child's arthritis.

• Organise a meeting early on with teachers and support staff to create a shared plan
• Small changes can make a big difference. Extra time for writing tasks, mobility support, or a quiet space to rest
• If flare-ups or fatigue make regular attendance difficult, ask about flexible learning or remote schooling options

Together, we can make sure your child feels included, supported, and able to thrive at school.

A diagnosis of juvenile idiopathic arthritis doesn’t just affect joints, it can bring up big feelings, too. Supporting your child’s emotional wellbeing is just as important as their physical health.

• Talk openly: make space for your child to express worries or frustration. Let them know that their feelings are valid, and model resilience without pretending everything is easy
• Stay connected: peer groups and whānau communities offer a sense of belonging and understanding. Our Families of Children with Arthritis Facebook group is a safe space for sharing and asking questions
• Attend family events: our youth and whānau camps offer opportunities to meet others, hear from experts, and feel seen

Feeling understood is powerful - for you and your tamariki.

As your child gets older, they’ll start to take more ownership of their health journey. That’s a natural and empowering part of life with any long-term condition.

Encourage them to:

• Be involved in care decisions and speak up at appointments
• Ask questions about their treatment
• Talk openly about body changes, puberty, and friendships

When it’s time to transition to adult services, support from your clinical team and counsellors can make the process smoother. Keep the kōrero going and celebrate their growth as they learn to live well with arthritis.