Welcome to Arthritis New Zealand

Share insights, experiences and knowledge

Welcome to Arthritis New Zealand

Blog: Your community, your voice

Welcome to Arthritis New Zealand

Community: Stronger together

Your Community, Your Voice Blog

Welcome to the Arthritis New Zealand Your Community, Your Voice Blog. This blogging community brings together the expertise, insights and experiences of a diverse range of people who are living with different kinds of arthritis, as well as Arthritis Educators working for Arthritis New Zealand, clinicians and allied health professionals.

This is an inclusive, positive and empowering place for those affected by arthritis to share their experiences, knowledge and insights for the benefit of the broader community.

Athena Dennis: Blogging 101: Beginner’s checklist

Here is a checklist of things to consider adding to your posts to make them more relevant, lively and interesting to the reader. Although this checklist isn't prescriptive, it is advice. We encourage you to let your creative juices flow and be the free-wheeling...
Read More

Athena Dennis: Writing for Arthritis New Zealand: Blogger guidelines

Kia ora! So you would like to join our blogging community at Arthritis New Zealand? We’re so happy to have you on-board. Your thoughts, opinions and experience of either having arthritis or helping those with arthritis will be immeasurably helpful to other people. He...
Read More

Handhub

Hand Therapist

I’m a hand therapist who regularly sees people overcoming difficulties with thumb and hand arthritis. It’s possible to make improvements with a willingness to learn new ways of doing things and I’m excited about using social media to share ideas and experiences.

Daniel Umaga

Pacific Community Development Coordinator - Arthritis NZ

Talofa lava, my name is Dan Umaga. I was born in Newtown, Wellington in the 1960s. I am a first generation New Zealand-born Samoan. Our family shifted to Wainuiomata in 1965 where I grew up.

Jane Messer

Arthritis Educator/ RN - Arthritis NZ

Hi Everyone. I’m Jane an RN working as an arthritis educator for the past nine years.

I really enjoy my job, as I’m supporting the community to understand their arthritis diagnosis and how to manage to live positively with this long term health condition. 

Sera

I am 21 years young from a small town where everybody knows everything and everyone. I was diagnosed with fibromyalgia at the tender age of 19 but had gone through two years of tests and procedures to get to this.

But is that all? Follow me and my journey through all the little bumps in the road.

Valma

Age 69. Made in New Zealand. I was born and schooled in Hastings, spent thirty years living in Whakatane. In my retirement years, I now live in Tauranga with my husband and a ning-nong calico cat. I’m a published writer, however, these days write for enjoyment only.

Kate

Age 28. I have had SLE since I was 12 and Rheumatoid arthritis since I was 18, I am a total believer in how a positive mind is the first step in treating any symptoms and want to share how this frame of mind can help. I believe in educating people on medication or alternative treatment, as I am big on using both methods.

Tonya

Female, Age 41. Yesterday, a friend asked if I’d like to see a movie with her one night next week. I had to decline, because this new rheumatoid arthritis of mine is relentless and I struggle even with home stuff and kid stuff.

Do you know what she said? “It’s all in your head.” I’m a youngish mum with a chronic illness. My blog is about what it’s really like living with arthritis. I haven’t experienced a miracle cure (but I’d like to!) and no… it’s not in my head! 

Tim

I’m Tim, 55, and have osteoarthritis. No matter what your age, a diagnosis of arthritis is a difficult change to come to terms with. I want to encourage others who live with arthritis to do the single best thing in their lives – keep moving.In August 2017 I take part in my toughest cycling challenge yet – the Le Mans Pearl Izumi 24H Velo.

HotriggeredKiwi

G’day I’m Bruce I work in the engineering sector and I’m also known as hottriggeredkiwi. A clue to my history is that I grew up on a dairy farm near a tiny town in rural Waikato.

I was diagnosed with sero-negative ankylosing spondilitis back in the late 80’s.

Olivia

Olivia, aged 26: I currently have my own blog about my experience of living with Lupus and would love to share my journey of navigating this illness with others. I am really passionate about spreading awareness about how Arthritis impacts younger people.

Erin

Hi, I’m Erin and I’ve lived with Juvenile Rheumatoid Arthritis since 1973. I was born in the United States and obtained a Master of Science degree in Marriage and Family Therapy there in 1998. In 1999 I married a Kiwi and moved to live in New Zealand.

Gezellig

A small town kid living in a big city, dinosaur geek, musician and human to multiple cats. I’ve had arthritis since I was ten years old, and I’m keen to share my experiences of navigating the world and trying to adult while living with chronic illness.

Sarah S 

Hi I’m Sarah. I’m 35 and I’ve had rheumatoid arthritis since I was 22. It’s been a challenge over the years to raise my three kids and reach my goals while navigating life with a chronic condition. 

Kylie Frost 

Hi I’m Kylie Frost. I suffer from a form of arthritis called Ankylosing Spondylitis. Inflammation in my spine and other joints is causing my bones to fuse together. The only way I can prevent this is to keep moving.

This October I will be doing the ASB Auckland Marathon on behalf of Arthritis New Zealand. 

Kylie Frost: My road to living again with arthritis

Two years ago I left my rheumatologist’s office with nothing more than advice. No further treatment options were available. There was no magic pill to make my pain disappear. Over 30 years of searching for an answer and I finally had a diagnosis. I had a name –...
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Sarah S: The ‘you’re too young to have arthritis’ guide to exercise

If you’ve had arthritis a while, the chances are that someone (or perhaps many people) have reminded you of the importance of exercise for managing arthritis. The medical professionals are right about that – exercise is a helpful tool for pain management. In fact,...
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Gezellig: Tips for getting through flare-ups

I’ve been struggling all week to come up with a topic for this blog post. I haven’t felt particularly inspired or creative and have been struggling just to manage day-to-day life. I’ve put it down to the fact that my arthritis has been flaring a bit this week, nothing...
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Erin: Arthritis arrives

I was walking to my car when I dropped my keys. I stood staring at them. I was alone on the large expanse of grass at university. No one was around to help. Now what? Arthritis arrives I was only seven years old when I was diagnosed with juvenile rheumatoid arthritis...
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Olivia: Life-changing words

“That is all I want in life: for this pain to seem purposeful.” - Elizabeth Wurtzel "Your daughter has systemic lupus erythematosus." It was six simple words, strung together in a sentence that would dramatically change a young family’s life, as they nervously sat in...
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Hotriggeredkiwi: Day’s dawning

Another long week at work with 50-plus hours on the clock... again, the extrication of self out of an extremely warm, soft and cosy bed on this cold autumnal morning is a toughie. I have to wake up anyway, even if only to silence the alarm that is yet to go off at...
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#24HrTim: Life on two wheels

Big day yesterday started my mental conditioning. In endurance sports, you can train the physical side with hours and k's in the saddle, but that can never prepare you for the many things you will mentally have to deal with. The hardest part to train and maintain is...
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Tonya: A day in my shoes

Wednesday, 7 a.m. 1 spoon. Miss 10 stumbles into the room and snuggles in for our morning cuddle, followed by Miss 8. It’s our favourite way to start the day, and it reminds these two they’re loved, despite my limitations.   7.15 a.m. 5 spoons. I’ve had a quick...
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Kate: Mind full or mindful?

Is your mind full or are you being mindful? There is a big difference and since figuring out this difference, my mind and body have been so much more in sync. I wake up every morning, count 10 deep breaths then slowly assess my body from my head to my toes. I ask...
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Val: Life my way

Self-help She was young, she was pretty and she was smiling.  There I sit – not so young, not so pretty and definitely not smiling. All the same, I’m going to hang onto her every word, because you see, I found this lady inside my computer trapped in a self-help video....
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Sera: Arthritis (noun): A disease causing painful inflammation and stiffness of the joints.

arthritis ɑːˈθrʌɪtɪs/ noun A disease causing painful inflammation and stiffness of the joints. That word goes round and round and round in my head like an old record. Arthritis – it's such a funny word to say out loud – arf-right-izzz. I think the more you say it the...
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Jane Messer: An Arthritis Educator’s personal experience of living with arthritis

Working alone at night as a young junior nurse on an orthopaedic ward was the start of it all. We nurses often had to turn heavy patients in plaster casts on our own and this did nothing to support our joint health. A back injury I sustained (and neglected) as part of...
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Handhub: Give yourself a hand

Hand therapists treat people with hand, thumb and wrist arthritis on a daily basis and our clinic is no different. I often bring to mind a comment I heard in 2010 at the Christchurch opening of the Bone and Joint Decade. A local rheumatologist described arthritis...
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Daniel Umaga: Gout can be treated and managed

I didn’t really know much about gout but after reading up on it and speaking with some of our Arthritis Educators, it was great to learn that gout can be treated and that there are many ways to manage the pain. I have family members who suffer from gout and it breaks...
Read More

Athena Dennis: Blogging 101: Beginner’s checklist

Here is a checklist of things to consider adding to your posts to make them more relevant, lively and interesting to the reader. Although this checklist isn't prescriptive, it is advice. We encourage you to let your creative juices flow and be the free-wheeling...
Read More

Athena Dennis: Writing for Arthritis New Zealand: Blogger guidelines

Kia ora! So you would like to join our blogging community at Arthritis New Zealand? We’re so happy to have you on-board. Your thoughts, opinions and experience of either having arthritis or helping those with arthritis will be immeasurably helpful to other people. He...
Read More

Daniel Umaga: Raising awareness of gout in Pacific communities

I didn’t really know much about gout but after reading up on it and speaking with some of our Arthritis Educators, it was great to learn that gout can be treated and that there are many ways to manage the pain. I have family members who suffer from gout and it...
Read More

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