Your Community, Your Voice Blog
Welcome to the Arthritis New Zealand Your Community, Your Voice Blog. This blogging community brings together the expertise, insights and experiences of a diverse range of people who are living with different kinds of arthritis, as well as Arthritis Educators working for Arthritis New Zealand, clinicians and allied health professionals.
This is an inclusive, positive and empowering place for those affected by arthritis to share their experiences, knowledge and insights for the benefit of the broader community.
I’m a hand therapist who regularly sees people overcoming difficulties with thumb and hand arthritis. It’s possible to make improvements with a willingness to learn new ways of doing things and I’m excited about using social media to share ideas and experiences.
Pacific Community Development Coordinator - Arthritis NZ
Talofa lava, my name is Dan Umaga. I was born in Newtown, Wellington in the 1960s. I am a first generation New Zealand-born Samoan. Our family shifted to Wainuiomata in 1965 where I grew up.
Arthritis Educator/ RN - Arthritis NZ
Hi Everyone. I’m Jane an RN working as an arthritis educator for the past nine years.
I really enjoy my job, as I’m supporting the community to understand their arthritis diagnosis and how to manage to live positively with this long term health condition.
I am 21 years young from a small town where everybody knows everything and everyone. I was diagnosed with fibromyalgia at the tender age of 19 but had gone through two years of tests and procedures to get to this.
But is that all? Follow me and my journey through all the little bumps in the road.
Age 69. Made in New Zealand. I was born and schooled in Hastings, spent thirty years living in Whakatane. In my retirement years, I now live in Tauranga with my husband and a ning-nong calico cat. I’m a published writer, however, these days write for enjoyment only.
Age 28. I have had SLE since I was 12 and Rheumatoid arthritis since I was 18, I am a total believer in how a positive mind is the first step in treating any symptoms and want to share how this frame of mind can help. I believe in educating people on medication or alternative treatment, as I am big on using both methods.
Female, Age 41. Yesterday, a friend asked if I’d like to see a movie with her one night next week. I had to decline, because this new rheumatoid arthritis of mine is relentless and I struggle even with home stuff and kid stuff.
Do you know what she said? “It’s all in your head.” I’m a youngish mum with a chronic illness. My blog is about what it’s really like living with arthritis. I haven’t experienced a miracle cure (but I’d like to!) and no… it’s not in my head!
I’m Tim, 55, and have osteoarthritis. No matter what your age, a diagnosis of arthritis is a difficult change to come to terms with. I want to encourage others who live with arthritis to do the single best thing in their lives – keep moving.In August 2017 I take part in my toughest cycling challenge yet – the Le Mans Pearl Izumi 24H Velo.
G’day I’m Bruce I work in the engineering sector and I’m also known as hottriggeredkiwi. A clue to my history is that I grew up on a dairy farm near a tiny town in rural Waikato.
I was diagnosed with sero-negative ankylosing spondilitis back in the late 80’s.
Olivia, aged 26: I currently have my own blog about my experience of living with Lupus and would love to share my journey of navigating this illness with others. I am really passionate about spreading awareness about how Arthritis impacts younger people.
Hi, I’m Erin and I’ve lived with Juvenile Rheumatoid Arthritis since 1973. I was born in the United States and obtained a Master of Science degree in Marriage and Family Therapy there in 1998. In 1999 I married a Kiwi and moved to live in New Zealand.
A small town kid living in a big city, dinosaur geek, musician and human to multiple cats. I’ve had arthritis since I was ten years old, and I’m keen to share my experiences of navigating the world and trying to adult while living with chronic illness.
Hi I’m Sarah. I’m 35 and I’ve had rheumatoid arthritis since I was 22. It’s been a challenge over the years to raise my three kids and reach my goals while navigating life with a chronic condition.
Hi I’m Kylie Frost. I suffer from a form of arthritis called Ankylosing Spondylitis. Inflammation in my spine and other joints is causing my bones to fuse together. The only way I can prevent this is to keep moving.
This October I will be doing the ASB Auckland Marathon on behalf of Arthritis New Zealand.