Fibromyalgia often causes widespread pain – people describe it as ‘hurting all over’. The pain can vary from person to person, come and go, and change in intensity during the day. Other symptoms include:
- Insomnia or poor sleep – waking up tired
- Difficulty focusing and paying attention (often called ‘fibro fog’)
- Changes in mood, anxiety and depression
- Gastrointestinal problems
- Heightened sensitivity to touch and pressure. Common trigger points include neck, shoulders, chest, hips elbows and knees.
Fibromyalgia often runs in families. People with rheumatoid arthritis, lupus or ankylosing spondylitis are also more likely to develop fibromyalgia although it is not a disease of the joints or an inflammatory condition. Fibromyalgia is not progressive and does not cause permanent damage to bones, joints or muscles.
For these reasons, fibromyalgia is more often called a syndrome rather than a disease and is very difficult to diagnose because it can mimic other conditions. No one really knows what causes it although it has been linked to psychological trauma and the body’s interpretation of and response to pain signals.
Around 1 in 50 people will develop fibromyalgia at some time in their life, usually between the ages of 25 and 55. The condition mostly affects women, but men, children and teenagers can have it too.
There is currently no cure for fibromyalgia but researchers are working on understanding it better. Medication, exercise, relaxation and reducing stress all help reduce symptoms. Most people, with support from their healthcare team, eventually find a way to manage their symptoms.
fibro means fibrous tissue
myo means muscle
algia means pain
How can I manage my fibromyalgia?
Each person’s symptoms and experience of fibromyalgia are different, so management options will vary as well and are usually a mixture of medical approaches and self-care.
Medications alone are seldom successful in treating fibromyalgia but they can reduce pain and improve sleep. They include:
- painkillers such as paracetamol and non-steroidal anti-inflammatory drugs (NSAIDS) are usually ineffective in fibromyalgia, although they may still be useful for relieving underlying arthritic pain.
- tricyclic anti-depressants such as amitriptyline and nortriptyline are used in low doses to improve sleep and boost the body’s natural mechanisms to reduce pain.
- anticonvulsants such as gabapentin and pregabalin are used to treat nerve pain (neuralgia) and have been shown to help people with fibromyalgia.
Moving your body will help improve your mood, combat fatigue, increase muscle tone, improve blood flow, ease digestive problems and aid sleep. An exercise programme should include stretching, strengthening and aerobic exercise. The key is to start gradually, especially if you are in pain. Walking, swimming and Tai Chi are all great forms of exercise and warming up first is very important.
It’s important to balance activity with rest and be guided by what your body needs. Try to reduce stress by planning ahead and breaking activities into small manageable tasks with regular breaks. This will help prevent overwhelming fatigue and decrease your pain. Learn some relaxation techniques to ease muscle tension and anxiety. These might include:
- hot and cold packs
- infrared heat
Fatigue is a key symptom of fibromyalgia so getting enough sleep becomes vital. It’s also important not to spend hours in bed as too much inactivity can also be harmful both physically and emotionally. Instead of long naps, try regular micro-rests of 5 to 10 minutes during the day.
Tips for a good night’s rest
- Avoid caffeine in the evening (including soft drinks, alcohol, coffee and tea)
- Avoid smoking
- Turn off screens (TV, mobile devices, laptops) at least half an hour before bedtime
- Develop a regular routine to help you wind down before bedtime
- Go to bed and wake up at the same time each day
- Make sure your bedroom is dark, quiet and a comfortable temperature
- Try a warm bath before bedtime to ease pain and stiffness.
Pain can affect your mood, making you feel sad, anxious, fearful, frustrated or angry. Psychological approaches address the emotional aspects of pain and can help prevent it from becoming overwhelming. Cognitive behavioural therapy (CBT) is one approach that has been shown to help control anxiety for people with fibromyalgia. This should be undertaken with a trained therapist or clinical psychologist. Counselling or psychotherapy may also be helpful.
Living and coping with a chronic condition like fibromyalgia can be difficult. Acknowledge your feelings and talk to your family, health professionals and friends about how they can best support you. Discussing your experience of fibromyalgia with others often helps.
I really enjoyed the webinar on Fibromyalgia. So good to have something g I could watch at home and not to have to go out to a meeting in the rain!
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